Category Archives: fibro

It’s Fibromyalgia Awareness Day

May 12 is Fibromyalgia Awareness Day.    Send good thoughts to someone who deals with this.  If you don;t have it, imagine a daily migraine, but all over your body.  Or a horrible case of the flu.  Some days are better than others.  Some of us can work, others can’t.  The pain and fatigue can be debilitating.  And don’t get me started on the brain fog.

What’s your Fibro story?  My personal Fibro story began years before my diagnosis,  You’ve heard it before, so I won’t repeat it.  I’m sure you’re tired of hearing it by now.   Pain is my constant companion and I am incredibly thankful for a family who gets it for the most part.  The kids (adults now) know when I need the sleep and don’t necessarily see it as me taking a lazy day.  Hubs has taken over 95% of laundry duties because the bending and reaching tend to lead to pain spikes.

After my official diagnosis in 2016, I went into research mode; searching on and offline for resources that would help.  The National Fibromyalgia Association has been a weekly stop. The resources have been invaluable to me.   If you know someone with Fibro and don’t know much about it, this is a great place to start.

To my fellow spoonies, let’s raise our glasses to the doctors and researchers who get it and are looking for ways to make our lives better.  Cheers!

Chronic pain killed Prince?

I loved Prince.  I loved him since 1979 when “I Wanna Be Your Lover” hit the airwaves.  I loved how he was different.  He cared not for haters and did his own thing.  He inspired me.

I read an article a few minutes ago that made his death even sadder.  Lorraine Berry’s Raw Story post states the Prince died from chronic pain.   There is speculation that he has a cocaine habit.  He could have tried self-medicating, something I’ve done from time to time. I don’t know what happened with him, and will not speculate any further on what happened to him . I do know what chronic pain does to me.

Some days it’s like I can feel the life draining out of me. When meds stop working, I get desperate to find anything that helps.  Sleeping all the time does not work because I have things to do and people to care for.  Self-medication becomes a necessity at times, and that is not how things should be. I’m  not just looking to score drugs. I want relief; to feel close to the old normal again.

And now this post is coming to an end.  You know,  because things to do and people to care for.  Taking a few deep breaths, pasting on a less grouchy face, and going for it.

Costochondritis

I’ve been feeling like crud lately and thought this would be a good time to discuss various side issues that go along with a Fibromyalgia diagnosis.  I am not a  medical professional and don’t claim to be.  Don’t assume that my experiences are the same as yours.  If something is happening that you don’t recognize, go get checked out. 

Costochondritis is literally a pain in the chest.  It’s terrifying to anyone, especially one with a family history of cardiovascular issues.  My first experience with it came in the early 90s.  I was in the middle of an argument with my then boyfriend and started feeling bad.  I put the argument aside and went to bed, hoping rest would make me feel better.  It didn’t.  I awakened with strong chest pains and trouble breathing. The trip to the ER cost a pretty penny to the uninsured food service employee. but it was worth it to know that I wasn’t having a heart attack.

Many years and a few similar episodes later and it still results in a similar fear.  I know now what symptoms to look for and know the attack will pass.  Costochondritis is a regular part of my life now and just part of a severe Fibro flare.

Costochondritis, or inflamed breast bone,  is painful inflammation of the breast bone and rib cage.  Like me, if may make you think you’re having a heart attack.  The pain may come out of nowhere like mine did, or it may be the result of overtraining, an injury, or extended coughing fits that accompany a cold or flu bug.  Treatment is easy – just over the counter anti-inflammatory solutions like tylenol or Advil should do the trick. When Fibromyalgia is involved, the pain is intensified and does not always fade as quickly as one would hope.  Extended pain saps energy, and when the chest pain combines with the spine pain, makes Sherrie tired and angry rather than friendly.

Do you have Costochrondritis?  How do you deal with it?

Having a bad night

I need to just write a while to keep things honest.

It’s been a good weekend so far.  The pre – holiday food shopping is done, hubs had an extra day off, I completed training on a new project, and the weather’s been great.

It’s been a busy day, so I’m not upset about needing a little extra time to wind down.  Then the pain creeped up a little.   I started deep breathing, but needed something more.  I took Advil and Melatonin,  then went to bed.

I laid here a while, started deep breathing again, then realized I needec zometjing stronger than Advil.  I took half a dose of something stronger and went back to bed.

Out of nowhere,  my hands hands began to ache.  I looked down to see the puffy knuckles of arthritis and Fibro.

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I’m covered in pain relied cream, full of pain relievers, and still feeling 80% of the pain that forced me to reach for the meds.

Nights like this make me sad.  It’s frustrating how quickly a pain flare can steal my joy.  My mind wanders to thoughts of what the next 10 years could bring.  My spine is already 20 years older than my chonological age.  I’m already having trouble with my grip.  Fear clouds my thoughts and blocks the light.

But I can see the sun.  I refuse to let the clouds steal it from me.  I will have bad times, but there will be good times, too.  I just to ride it out.  After some sleep.

Here’s to better days.

 

Good and bad days

We all have days when we feel pretty dang good.  Our moods are good.  We sing along with the radio and maybe dance, too.  We hit our workouts with enthusiasm and leave it all on the floor.  The workday flows smoothly and the kids go to bed without a fuss.  Those days rock.

Oy, bad days.  We feel like there’s a rainstorm overhead.  Work is a mess, the kids fight and whine about everything,  and you cannot stop dropping or tripping over things.  We burn dinner.  We feel overwhelmed and fall into bed only to stare at the ceiling most of the night.  Those days do anything but rock.

Today is in-between for me.  I’m singing and dancing in my seat, but there is no dancing.  I’m barely coordinated enough to walk.  And don’t get me started on cooking.  My mind and body are not on the same page and a fibro flare is around the corner.  But it’s okay.  This will pass.  I will survive and thrive.  And dance.

What kind of day are you having?

Handmade beauty with Beauty by Shea

You know how people tell you that many commercial health and beauty products are bad for you and how we should go more natural?  What they don’t tell you is how expensive it is to go more natural.  Sticker shock is a killer!  But once you get over the shock you hit Google and Pinterest.  Once you hit Google and Pinterest, you find recipes for the health and beauty items you need.  And sometimes you realize that you have most of the ingredients on hand.  Then you go into the kitchen and blend, giggling all the while.   Sometimes you share these handmade products with friends and family.

That’s my story.  I drifted away from handmade a little, but learning more about Fibromyalgia and environmental sensitivities sent me back into the kitchen.  I make my own laundry detergent, dish soap, all-purpose cleaner, body wash, shampoo, deodorant, and skin cream.  The family doesn’t always share my enthusiasm for my handmade concoctions, but the addition of Shea Butter to the skin cream recipes brings them around.

Beauty by Shea photo.
Beauty by Shea photo.

I regularly make my own foot cream and muscle rubs with essential and coconut oils, but the family wasn’t fond of the coconut oil base.  Adding Shea Butter seems to do the trick.  It thickens the base and the products leave no oily or sticky residue when applied.  I had the chance to try Beauty By Shea’s Pure Organic Unrefined Raw Shea Butter and jumped on it.  This was not my first purchase of raw Shea Butter so I knew what to expect.  My package arrived quickly (thanks to Amazon Prime) and I was impressed from the jump. Real, unrefined Shea Butter is firm-textured at room temperature, has a creamy ivory color, and a faint fragrance on its own that blends perfectly with any added fragrance.

I use it straight up on my elbows and knees to help soften the rough skin. Just a touch is all you need. For my hands, I use a 60/40 blend of Shea Butter and Coconut Oil without added fragrance as a nightly hand cream.  In cold weather when my hands are particularly dry and cracked, nothing beats a 90/10 Shea/Coconut blend, especially when its still warm and has a hint of added fragrance. I reach for essential oils because I’m cutting out as much junk such as artificial fragrance as possible.

This is the start of something wonderful.  Sherrie Thompson photo.
This is the start of something wonderful. Sherrie Thompson photo.

When I need to pick up more Shea Butter, Beauty By Shea is where I’ll shop.  The 1 pound bricks regularly sell for $19, but right now are on sale for $11!  That is an unreal deal!  I may order another bag now so I’ll have it on hand through cooler months and for holiday gifts.

Do you make your own household or beauty products?  What are your favorites?

I received one or more of the products mentioned above for free using Tomoson.com. Regardless, I only recommend products or services I use personally and believe will be good for my readers.

Painsomnia is real

It’s a little after 2 am and I’m wide awake.   I don’t want to be.  It’s nothing new, really,  because insomnia is my frenemy.  What is fairly new is pain-induced insomnia.   Thanks to fellow spoonies, I now know that painsomnia is real and unfortunately common.

So, what do I do when painsomnia strikes?  It depends.   Tonight I’ve played around on Instagram and Facebook.   Sometimes I work if I have a deadline around the corner.   If I’m still awake in an hour, I’ll go pack lunches for the family.   Or not.  The thought of the 5 am alarm going off while I stare at the ceiling is a downer.

I’m going to meditate for a while in corpse pose and hope I can drift off.  If not, I’ll see you later.

Do you get insomnia?   How do you cope?

 

Review: Ozeri WeightMaster Digital Bath Scale with BMI and Weight Differential Detection

I try to avoid the scale. I know, weight is a measure of health (so they say), and there’s a scale hop required at every doc’s visit and one at the physical therapist’s office.  We always had a scale growing up and for some reason were expected to have one.  I didn’t have one during my single days and didn’t care, but for some reason just had to have one once the life with hubs, kids, and dogs started.  For some reason I felt like we needed one.

I hate the scale in general.  It mocks me when I think I look smaller and feel lighter.  It jumps out from under the bed and kicks me in the toe.  It calls to me when I ignore it for too long, taunting me.  Yes, I’m aware it may not happen that way, but it feels like it.

I had the opportunity to move on up to a prettier, less bossy scale and jumped at the chance. The timing was perfect because physical therapy was in full swing and so was my tweaked eating plan.  I figured it wouldn’t hurt to add something else new
to the mix, even if it was as intimidating as a scale. The Ozeri WeightMaster Digital Bath Scale with BMI and Weight Differential Detection has a long name, sleek look,  and nice features.

See, I told you it was attractive.
See, I told you it was attractive.

The first thing I noticed when I opened the package is how attractive the scale is. This baby is a nice-looking slab of
tempered glass with non-slip pads that are gentle on my hardwood floor.  It came with batteries (nice) and clear instructions on
setting up separate profiles for multiple users.  The Weight Differential Detection tracks changes from your last weigh in,
and averages of the last three and seven weigh-ins.  How cool is that?  I like this feature because I can accurately track my
results alone.  Granted I had to teach the family to switch between profiles, but that was no biggie – when they paid attention.

The WeightMaster accepts weight up to 400 pounds.  I don’t want to need that weight limit, but it’s nice to have that option.  It also measures Body Mass Index (BMI), but honestly I try to ignore BMI measures myself because it doesn’t paint a clear picture of health.
I do love the Color Alert Technology which displays a green light for a loss and red light for gain.  If I wanted to gain weight, I might find this annoying.  But I’m all about gains in health and losses in fat and pants size.

I almost bought a different scale, but am glad the Ozeri WeightMaster fell into my lap.  Not only is it accurate (compared to the doc’s scale) and attractive, it’s engineered and manufactured in the USA.  More companies need to stay here instead of trying to move out of the country (I’m  looking at you, Burger King). Ozeri stands behind their products with a 100% Hassle-Free Satisfaction Guarantee. Pick up the WeightMaster in (black or white) or check out Ozeri’s other scales.  I won’t get on the scale more often, but when I do, it will be the WeightMaster.

I received one or more of the products mentioned above for free using Tomoson.com. Regardless, I only recommend products or services I use personally and believe will be good for my readers.