Category Archives: fibromyalgia

It’s Fibromyalgia Awareness Day

May 12 is Fibromyalgia Awareness Day.    Send good thoughts to someone who deals with this.  If you don;t have it, imagine a daily migraine, but all over your body.  Or a horrible case of the flu.  Some days are better than others.  Some of us can work, others can’t.  The pain and fatigue can be debilitating.  And don’t get me started on the brain fog.

What’s your Fibro story?  My personal Fibro story began years before my diagnosis,  You’ve heard it before, so I won’t repeat it.  I’m sure you’re tired of hearing it by now.   Pain is my constant companion and I am incredibly thankful for a family who gets it for the most part.  The kids (adults now) know when I need the sleep and don’t necessarily see it as me taking a lazy day.  Hubs has taken over 95% of laundry duties because the bending and reaching tend to lead to pain spikes.

After my official diagnosis in 2016, I went into research mode; searching on and offline for resources that would help.  The National Fibromyalgia Association has been a weekly stop. The resources have been invaluable to me.   If you know someone with Fibro and don’t know much about it, this is a great place to start.

To my fellow spoonies, let’s raise our glasses to the doctors and researchers who get it and are looking for ways to make our lives better.  Cheers!

Chronic pain killed Prince?

I loved Prince.  I loved him since 1979 when “I Wanna Be Your Lover” hit the airwaves.  I loved how he was different.  He cared not for haters and did his own thing.  He inspired me.

I read an article a few minutes ago that made his death even sadder.  Lorraine Berry’s Raw Story post states the Prince died from chronic pain.   There is speculation that he has a cocaine habit.  He could have tried self-medicating, something I’ve done from time to time. I don’t know what happened with him, and will not speculate any further on what happened to him . I do know what chronic pain does to me.

Some days it’s like I can feel the life draining out of me. When meds stop working, I get desperate to find anything that helps.  Sleeping all the time does not work because I have things to do and people to care for.  Self-medication becomes a necessity at times, and that is not how things should be. I’m  not just looking to score drugs. I want relief; to feel close to the old normal again.

And now this post is coming to an end.  You know,  because things to do and people to care for.  Taking a few deep breaths, pasting on a less grouchy face, and going for it.

Costochondritis

I’ve been feeling like crud lately and thought this would be a good time to discuss various side issues that go along with a Fibromyalgia diagnosis.  I am not a  medical professional and don’t claim to be.  Don’t assume that my experiences are the same as yours.  If something is happening that you don’t recognize, go get checked out. 

Costochondritis is literally a pain in the chest.  It’s terrifying to anyone, especially one with a family history of cardiovascular issues.  My first experience with it came in the early 90s.  I was in the middle of an argument with my then boyfriend and started feeling bad.  I put the argument aside and went to bed, hoping rest would make me feel better.  It didn’t.  I awakened with strong chest pains and trouble breathing. The trip to the ER cost a pretty penny to the uninsured food service employee. but it was worth it to know that I wasn’t having a heart attack.

Many years and a few similar episodes later and it still results in a similar fear.  I know now what symptoms to look for and know the attack will pass.  Costochondritis is a regular part of my life now and just part of a severe Fibro flare.

Costochondritis, or inflamed breast bone,  is painful inflammation of the breast bone and rib cage.  Like me, if may make you think you’re having a heart attack.  The pain may come out of nowhere like mine did, or it may be the result of overtraining, an injury, or extended coughing fits that accompany a cold or flu bug.  Treatment is easy – just over the counter anti-inflammatory solutions like tylenol or Advil should do the trick. When Fibromyalgia is involved, the pain is intensified and does not always fade as quickly as one would hope.  Extended pain saps energy, and when the chest pain combines with the spine pain, makes Sherrie tired and angry rather than friendly.

Do you have Costochrondritis?  How do you deal with it?

Review – Renard Compression Socks

I received a pair at a discounted price for review purposes via Tomoson.com.  My views are my own and I do not recommend anything if I don’t believe in it. 

The muscle and joint aches after a solid workout are manageable for the most part until the next day.  That’s when I really feel it, especially after leg day.  Foam rolling, stretching, and muscle rub just don’t do enough after ambitious leg days. Add in the misfiring pain messages (thanks, Fibromyalgia) and Arthritis and I want to skip leg day for weeks. I wear a compression sleeve on my knee and wrap on my ankle when the pain gets bad, but had not considered compression socks until after the 5K in January.  I loved how good my back and shoulders felt after the run/walk and I think the compression top likely played a role.  I know the support for my knee and ankle made a difference, too. renard off

I’ve checked prices on compression socks and leg sleeves and decide I could try them later.  You know, when my wallet felt heavier. I was approached with an offer to purchase my first pair of compression socks at a deep discount and figured it couldn’t hurt.  I am now officially in love with Renard Compression Socks. Sorry, hubby.

Why Renard Compression Socks?  According to Renard (and others), they provide muscle support and functionality, increase blood circulation, inhibit accumulation of lactic acid, all of which reduce soreness after a workout.  I decided to put them to the test while lifting, walking, and in general when a pain flare kicked in.  I felt like I could go further while walking and hit the 4 mile mark at close to a 4 mph pace.  I felt it in my shins and calves while speeding up, but that feeling was fleeting and did not result in excessive soreness or pain the next day.  My feet were also dry thanks to the breathable Nylon/Spandex blend.

I tried them a second time on leg day.  Oh, man, was it leg day.  There were squats, lunges, and deadlifts for what felt like days.  I finished with a good stretch and put my feet up afterward.  I expected pain the next day, but did not feel as much as I expected.  Renard promises calf and shin support and I had it. My thighs, however, were not as pleased.  Then again, they were not covered by compression gear. 

IMG_20160220_013948

On the third try, it was just a pain flare day.  My ankles were swelling and I had leg cramps.  I decided to slip on the compression socks to see if they would reduce the pain in my legs so I could sleep.  They did!  I felt a reduction in ankle pain and the leg cramps seemed to fade.  Compression socks were like a constant massage – a gentle, yet effective massage.  I felt fantastic the next morning and couldn’t believe the difference that type of support made.

Like I said, I’m now in love with Renard Compression Socks.  The best part, they’re on sale right now for $15.99 a pair on Amazon and they fit over my healthy runner’s calves.

Do you use compression gear?  What is your favorite type?

One week ago

This time last Saturday,  your friendly neighborhood Sherrie walked her first 5K.

The original plan was to walk/run, but the joints were not having it.

I arrived late and started after everyone was gone.  Adele was singing her heart out in my ears and I was near tears myself.   But I kept going.  Besides, Charleston needed to see me repping for #TeamVegan.  I had someone ask about my shirt and plant-based living, which is what I’d hoped.

20160116_094038

And this band was my mantra.  I was there to compete with the Sherrie from a few months ago.  The Sherrie who wouldn’t have pushed the crowd out of her head and just walked.

20160116_094459

But I did it!  Black Girls Run Charleston,  Vegan Bodybuilding and Fitness community, Official Team Green, Vegan N3rd Squad,  and my Facebook fitness families and running clubs, thank you.  To my family,  thanks.   To Sherrie from a few months ago,  see what you did?  We’ve got this!

20160116_094505

On to the next one!

 

 

Healing by any means

No, this is not another ‘no longer vegan,’ posts.  It’s just a commentary on trying work around meds and supplements that aren’t exactly veg-friendly. 

It’s a struggle,  y’all.  Not sticking to my way of eating, but trying to find vegan supplements and meds.  I’ve found many that work, but not all are veg-friendly.   Does it make me less compassionate?   No.  It means I’m one of the many dealing with this.

If you choose to judge me based on this mindset, so be it. Step into  body on a high pain day(well, week)  and talk to me afterward.  I’m doing what needs to be done while I find the optimal balance.

Does it mean veg-friendly instead of certified vegan supplements?   If the veg-friendly products work best, yes.  Does it mean dealing with meds that have no vegan alternative?   Yes, unfortunately.   Does it make me sad?  Yes.

I need to keep it together while on the journey.   On days like today, that means healing by any means necessary.

Having a bad night

I need to just write a while to keep things honest.

It’s been a good weekend so far.  The pre – holiday food shopping is done, hubs had an extra day off, I completed training on a new project, and the weather’s been great.

It’s been a busy day, so I’m not upset about needing a little extra time to wind down.  Then the pain creeped up a little.   I started deep breathing, but needed something more.  I took Advil and Melatonin,  then went to bed.

I laid here a while, started deep breathing again, then realized I needec zometjing stronger than Advil.  I took half a dose of something stronger and went back to bed.

Out of nowhere,  my hands hands began to ache.  I looked down to see the puffy knuckles of arthritis and Fibro.

20151122_032142

I’m covered in pain relied cream, full of pain relievers, and still feeling 80% of the pain that forced me to reach for the meds.

Nights like this make me sad.  It’s frustrating how quickly a pain flare can steal my joy.  My mind wanders to thoughts of what the next 10 years could bring.  My spine is already 20 years older than my chonological age.  I’m already having trouble with my grip.  Fear clouds my thoughts and blocks the light.

But I can see the sun.  I refuse to let the clouds steal it from me.  I will have bad times, but there will be good times, too.  I just to ride it out.  After some sleep.

Here’s to better days.

 

Yoga classes for kids at Hazel Parker Playground

Yoga is my jam!  It helps me retain and increase flexibility in my stiff joints.  It helps me keep and regain my calm when things push my buttons.  It helps me relax my mind and body which helps reduce my pain.  It was an important part of my physical therapy regimen and equally important now.

I understand that yoga is not everyone’s cup of tea and have heard many spiritual arguments against it.  Yoga does not always lead to spiritual practice.  Fitness yoga is just that, another road to fitness.  In a class, students learn to breathe properly while moving through a sequence of poses.  Students learn to relax, focus, and improve coordination, balance, and flexibility.

Yoga for kids could be invaluable in teaching them how to deal with stressful situations in class, on the playground, and at home.  If you want to try yoga with your child, there are many videos available on Hulu and several yoga and Pilates channels available on Roku.  Charleston-area people have an option available through Charleston Parks and Recreation. Registration is open for a 12-week class for children ages 5-10.  The Thursday class runs from September 10 through November 10th and is $100.  The 3:30-4:40 pm time is perfect for an after-school activity!  Register online or in person at Hazel Parker Playground at 70 East Bay Street Downtown.

Have you tried yoga?  Your kids?   ‘m about to get my yoga on at 2 pm.  Maybe you can join me.

Until next time, peace and have a great weekend.

Nuphorin for anxiety relief

Note: I am not a medical professional. Anything shared here is based on my personal experimentation and not meant as medical advice. Do not alter your protocol without discussing it with your doctor.

Vitavana offered me a bottle of Nuphorin free of charge for my review.  My views on this and any product I review are my own. 

I am not a fan of pharmaceuticals, but I know when to stop experimenting When no other options work, I take my meds. If the side effects nullify any of the medication’s benefits, I discuss the options with my doc and we’ll work together to find an alternative solution.

Before I found a drug and supplement protocol that worked for me, my doc suggested I try an anti-anxiety medication for help with pain and stress relief.  Fibromyalgia and chronic pain patients sometimes also deal with depression and anxiety, so sometimes the addition of anxiety medication may reduce those issues and help take the edge off of pain.  With daily pain hovering in the 6-7 of 10 range with flares and spikes in the 9-10 range, I figured I should try.  I was willing to try anything.

After three months of Cymbalta and her side effects, it was time to try a natural option.  I’ve heard that GABA, 5-HTP, magnesium, and vitamin B all have positive benefits for some anxiety symptoms, so the search for a supplement was on.  I didn’t want to add many more pills to my protocol, so I focused on combination supps.  Vitavana offered me a sample of Turmerex and I noticed the company also had an anxiety relief supplement available.  They offered a sample of Nuphorin and asked that I give it a try and share an honest review.

Nuphorin Anxiety Relief may be a good alternative for those using alternative options for anxiety or stress management. Each vegetarian capsule contains Ashwagandha extract, GABA, Chamomile, 5-HTP, DMAE Bitartrate, Vitamin B-1, Vitamin B-2, Niacinamide, Vitamin B-6, Folic Acid, Vitamin B-12, Calcium, and Magnesium.  The ingredient list did not worry me, so I stuck to the recommended dose of 1-2 capsules a day (one with breakfast and one with dinner) and wished for good results. I did not feel the blah haze the came with the Cymbalta and I didn’t feel the need to binge eat.  My heart hate went back to regular, my eyes stopped throbbing, and that, uh, loving feeling came back.  Hubby was happy about that.

If you’re currently using supplements for anxiety relief, Nuphorin Anxiety Relief is worth a try.  Each 60 capsule bottle is $39.95 with free shipping for Amazon Prime Members.  Vitavana offers a 60 day money back guarantee, so trying Nuphorin is risk-free.

I’ll share more about my protocol in other posts.  Finding the right mix of pharmaceuticals and supplements was just one part of the process.

Need turmeric? Try Turmerex.


I know my post yesterday focused on how my current protocol has little to no effect on my pain flares.  But before and after flares, I’m relatively pain-free. I’ve found the combination of prescription meds and nutritional supplements that work for me. Vegetarian-friendly formulas for Glucosamine and MSM, Magnesium, Calcium, and Zinc, protein and superfood blends, and turmeric work wonders.

Because I’ve shared far and wise about my love of turmeric and its benefits, Vitavana approached me and offered a free bottle of its professional-grade supplement.  I gave it a try and definitely feel the difference between it and a lesser-quality supplement.

 

Turmerex Turmeric 95% Extract comes in a easy-to-swallow vegetarian capsule.  Each capsule contains 712.5mg of curcumin and 5 mg of BioPerine.  Curcumin is the active compound in turmeric that’s reported to help reduce inflammation and boost the immune system.  BioPerine is a patented form of black pepper that boosts the body’s ability to absorb the curcumin.  It does not upset my stomach, even when the recommended daily dose is doubled. I take mine in the morning with breakfast because when I don’t, I feel it. Unlike some supplements, Turmerex has no real flavor and I can easily swallow it without water.  I also add turmeric to my food daily.  It’s included in at least one meal every day when I’m at home or have a prepared dish with me.

Life before turmeric and life with turmeric are totally different.  I do not ache as much with it in my protocol. I could not tell you how much the inflammation is reduced, but it is.  I am not as still or creaky first thing in the morning of after a longer session working at my desk.

Remember, I am not a health professional.  Anything I share here has been tried by me, and sometimes the experiments are unsuccessful.  I recommend you discuss any changes in your protocol with your doctor. 

If you make turmeric supplementation a part of your protocol, give Turmerex a try.  Each 60-capsule bottle is $39.95 with free shipping if you have Amazon Prime.  Vitavana offers a 60-day money back guarantee, so you could try the bottle and risk-free.  Turmerex is made in the US in an NSF-certified, FDA-compliant facility.

I’ll share more about what I take and why in other posts.  What works for me may not work for you.

Do you take turmeric?