Category Archives: chronic fatigue syndrome

Human Barometer and yoga

I think that my new nickname should be Human Barometer. It doesn’t matter how good I’m feeling or moving when the changes in barometric pressure are dramatic.

It always starts in my ankles. They feel a little tight, but not tight enough for a support or anything. I’ve I’d been training, I usually chalk it up to that. Then my knees get sore. That makes me check the weather a little more closely. If I see rain in the forecast, I know what is on the way and get out the turmeric and Aleve.

Once my hip and spine stiffen and go from an ache to throbbing pain, it’s on. So much on. Right now I’m typing this in a recliner with my back, neck, and head firmly against the back of the chair, legs raised in a partial recline. It’s the only comfortable position at the moment. My ribs, elbows, wrists, and shoulders are feeling it now, too. Tropical Storm Cindy is not heading my way (be safe, y’all), but I feel it anyway. Rain is coming ad we’ve had some here in Charleston since Sunday night’s thunderstorm.

Weather-related pain flare aside, I will get in some yoga today. It is International Yoga Day after all. I recognize my current limits and have a mix of workouts in my arsenal. I also know that I will always have a dog on my yoga mat if I step away.  16422838_10154381378520679_8437767875822278167_oFlexibility training helps make these bad days easier and make good days better.

Between yoga and walking, I am getting stronger physically. It just doesn’t feel like it on days like this. I’m trying not to fall into the pit that seems to open up whenever a flare is extended. Spoonies, you get me, right?

Happy Wednesday, Happy Solstice, and Happy International Yoga Day! May it be amazing!

It’s Fibromyalgia Awareness Day

May 12 is Fibromyalgia Awareness Day.    Send good thoughts to someone who deals with this.  If you don;t have it, imagine a daily migraine, but all over your body.  Or a horrible case of the flu.  Some days are better than others.  Some of us can work, others can’t.  The pain and fatigue can be debilitating.  And don’t get me started on the brain fog.

What’s your Fibro story?  My personal Fibro story began years before my diagnosis,  You’ve heard it before, so I won’t repeat it.  I’m sure you’re tired of hearing it by now.   Pain is my constant companion and I am incredibly thankful for a family who gets it for the most part.  The kids (adults now) know when I need the sleep and don’t necessarily see it as me taking a lazy day.  Hubs has taken over 95% of laundry duties because the bending and reaching tend to lead to pain spikes.

After my official diagnosis in 2016, I went into research mode; searching on and offline for resources that would help.  The National Fibromyalgia Association has been a weekly stop. The resources have been invaluable to me.   If you know someone with Fibro and don’t know much about it, this is a great place to start.

To my fellow spoonies, let’s raise our glasses to the doctors and researchers who get it and are looking for ways to make our lives better.  Cheers!

Healing by any means

No, this is not another ‘no longer vegan,’ posts.  It’s just a commentary on trying work around meds and supplements that aren’t exactly veg-friendly. 

It’s a struggle,  y’all.  Not sticking to my way of eating, but trying to find vegan supplements and meds.  I’ve found many that work, but not all are veg-friendly.   Does it make me less compassionate?   No.  It means I’m one of the many dealing with this.

If you choose to judge me based on this mindset, so be it. Step into  body on a high pain day(well, week)  and talk to me afterward.  I’m doing what needs to be done while I find the optimal balance.

Does it mean veg-friendly instead of certified vegan supplements?   If the veg-friendly products work best, yes.  Does it mean dealing with meds that have no vegan alternative?   Yes, unfortunately.   Does it make me sad?  Yes.

I need to keep it together while on the journey.   On days like today, that means healing by any means necessary.

Yoga classes for kids at Hazel Parker Playground

Yoga is my jam!  It helps me retain and increase flexibility in my stiff joints.  It helps me keep and regain my calm when things push my buttons.  It helps me relax my mind and body which helps reduce my pain.  It was an important part of my physical therapy regimen and equally important now.

I understand that yoga is not everyone’s cup of tea and have heard many spiritual arguments against it.  Yoga does not always lead to spiritual practice.  Fitness yoga is just that, another road to fitness.  In a class, students learn to breathe properly while moving through a sequence of poses.  Students learn to relax, focus, and improve coordination, balance, and flexibility.

Yoga for kids could be invaluable in teaching them how to deal with stressful situations in class, on the playground, and at home.  If you want to try yoga with your child, there are many videos available on Hulu and several yoga and Pilates channels available on Roku.  Charleston-area people have an option available through Charleston Parks and Recreation. Registration is open for a 12-week class for children ages 5-10.  The Thursday class runs from September 10 through November 10th and is $100.  The 3:30-4:40 pm time is perfect for an after-school activity!  Register online or in person at Hazel Parker Playground at 70 East Bay Street Downtown.

Have you tried yoga?  Your kids?   ‘m about to get my yoga on at 2 pm.  Maybe you can join me.

Until next time, peace and have a great weekend.

Entering my 46th year

Howdy, y’all.  I’m 46 now. I’m now six years older than my father was when he died.  In some ways, I’m healthier.  In others, well, you know the deal.

At my last appointment, my rheumatologist said she didn’t know what else to try because various meds did not have much of an effect.  She also joked that I’m one of the rare types who lose weight on Cymbalta rather than gain.  Ha, ha.  (Note: I went off Cymbalta and gained everything I’d lost.  I’ve since tweaked my menu and am back on the losing track.)  she also had no answers for me about my swelling hands or glands on my neck. I am not amused.  I have an appointment with my primary later this month.  Maybe she’ll have answers for me since I had blood tests a few weeks back.

I’m tired, frustrated, and still fighting.  Going more natural in conjunction with some meds to find the optimal balance and solutions.  I’ll always have arthritis and Fibromyalgia.  How my body handles them is what will change.  I’m listening to my body more and found the ideal training schedule.  I wear my pedometer every day and strive to get in more steps each week.  I eat more leafy and non-starchy plants than bread and other starchy goodness.  I eat less sugar.  I drink lots of water and herbal teas, especially those containing adoptogenic herbs (Organic India’s Tulsi Teas are my favorite).  I’m getting more sleep and taking Melatonin for help on bad days. I nap when necessary.

I will get better.  I will improve my quality of life. It’s getting better every day. Cheers!

How are you celebrating the newest year of your life?