chronic fatigue syndrome

Chapter 53 is a go

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Welp, it’s been a minute. I’ve been posting regularly on social media, so anything shared here for the part you’ve seen if you follow me. Here are the updates since January.

*Two jabs in the cervical spine
*A new rheumatologist, new tests, and new meds
*A new specialist for my hand/wrist/elbow pain and strength issues (first appointment pending)
*Increased pain, stiffness, and ability to function in general (thanks to pain, weakness, and cognitive issues)
*More daily screaming (pain and frustration)

And a big one – Chapter 53 began on March 30. I am now 13 years older than my dad when he died. I miss him and think he’d like who I grew to become. No make up and in flare central. Basically everyday lately, just a little older.


That’s it for now because my Saturday spoons are almost gone. Hopefully an hour or so with an ice pack or at least a nap will do the trick. Until next time, peace!



February 2019?

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Hi, all.

It has been too long without an update on the good old blog.  If you follow me on Facebook or Instagram, you know what’s been happening.  If you don’t, here’s a quick rundown.

I have Posterior Tibial Tendonitis in my left leg.  The tendon is responsible for some of my knee and ankle pain according to the Physical therapist and the doc told me recovery would be long.   Recovery and PT have been decidedly unpleasant but PT is working.  Slowly.supports

Due to the injury, my fitness game is limited.  I am not allowed to lift heavy or spend too much time on my feet.  Yoga, Pilates, and some walking in 30-minute increments make up the majority of my training schedule.  Yay.  The pain increases the fatigue, but it’s not anything new.  Fibro/CFS life, right?

Of course, my weight is having a negative effect on recovery.  Nutrition is the main focus for hitting my goals.  I’m currently following 2B Mindset and figuring out how to customize my plan.  2BThe program is helping me change my relationship with food and to get in more water and veggies daily.  It’s also helping me pinpoint exactly how much corn I can have before I have a reaction.  I’m not allergic, but am sensitive to it.  I’m losing inches and have fewer digestive issues all around.

I’m counting down to the big 5-0 and kicked off 2019 with the Shrimp & Grits 5K (one of 5k 2019the Charleston Marathon events).  There was a new course (all flat, baby), a new location for the finish and after party, and were veggie grits available.  There was also coffee which was awesome because it was COLD!

Meal prep is not just a one-day marathon anymore.  I break it into a two-day thing and find it a better fit overall.  As always, there are batches of greens and beans every week.

culi fried rice

Batch cooking this way makes it easy to throw together meals on the fly that I did not necessarily plan for.  I felt like Asian food one night, so I made Edamame Cauliflower Fried Rice with the baked tofu I batch cooked, a cup each of frozen edamame and mixed veggies, and two cups of cauliflower rice.

And now you’re up to date.  If you have any questions for me about my nutrition, PT, food prep game, or anything, feel free to ask.

Bloodwork update, May 2018

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Xena 3-2018

Say hi to Xena

Howdy, y’all.  What?  I said I’d get back to the regularly scheduled posts.  This one is a quick update on how 2018 is working so far.  My goals for the year are to get off more medication and continue to get stronger.

As of February I am off of Metformin with an A1C at 6.1 thanks to plant-powered menus  and am working on getting off meds.  At the tail end of May, I had a 3 month follow up to see how things stand.  They stand on point!

Bad cholesterol is down 20 points.  In three months.  Believe me, the happy dancing started in my head and my smile almost hurt.

Weight was down 5 pounds.  Not a huge drop, but it was still lower than my February appointment (and after lunch, fully dressed) and it’s worth celebrating.  The happy dancing continued.

The biggest news was the A1C.  It was still at 6.1 and a sign to the doc that I do not need Metformin and am on my way to prediabetic levels. You hear that. Prediabetic!  Once my A1C is under 5, I’ll be in remission.  I almost cried.  Seriously.

Doc also cut one of my blood pressure meds in half and said I may come off of them too as I continue to lost weight and get my numbers down.  She said to keep doing what I’m doing and recommended I add in exercise a few days a week.  I go back for more bloodwork in August.  I plan to see better results.

What am I doing?  Tracking my meals and water on My Fitness Pal has been huge.  I see how I’m doing and where I need to tweak things.  I eat more greens, oats almost daily, limit processed foods and sweeteners, and planned cheat meals.  My coach may not approve of the cheat meals, but I know myself.  If I do not have the flexibility of the occasional treat, I will end up on a free-for-all of all the forbidden foods.  Not that anything is really forbidden, just limited.

I’m looking at you, coconut, nuts, seeds, Nada Moo, and Go Max Go Bars. I love you all.

I’m walking more.  I take the psychos out every morning and get in a mile.  If I am up to it, I take another lap or two around the neighborhood. I keep a moderate pace and add faster intervals.  Xena has a pretty quick pace naturally, so when I’m ready to jog, she’ll be by my side.  Victor is getting older and likes to take his time.  He’s the perfect warm up or cool down partner.

My yoga/Pilates PT routine should be a priority, but it has slipped aside in favor of daily flexibility.  Just 10 minutes a day is the plan for now, but I see a 3-Week Yoga Retreat in my future.  I need more flexibility to help ease the daily pain and with recovery.  I am not 21 anymore and I feel it on a daily basis.

So, that’s the update. If you have any questions for me, just ask.  You know I’ll answer.  I know this is not an easy path, especially if there are chronic issues and emotional eating in the way.  I’m learning to work around my limits and finding my best path.  I hope you can find yours.

Until next time, peace!

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Victor thinks he should help me with my practice.

 

Catching up

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train shirtMorning, y’all.  Your friendly neighborhood Sherrie is slowly coming out of hiding. Between losing my boy Oz, extended pain flares, and a bit of a spiral, I have slacked off on taking care of myself.  Eating like crap (mostly junk) and minimal exercise (stretching enough to make moving easier and walking while shopping) led to increased pain, more fatigue, and losing a little bit of me every day.

Between losing my boy Oz, extended pain flares, and a bit of a spiral, I have slacked off on taking care of myself.  Eating like crap (mostly junk) and minimal exercise (stretching enough to make moving easier and walking while shopping) led to increased pain, more fatigue, and losing a little bit of me every day.  Although I have realized that my normal means that I will hurt and feel tired more often than not, I started feeling sorry for myself and pictured my future with more pain and less mobility.  This sent me down a darker path and binge eating.

What brought me out of it was a combination of things.  Well, I’m still in it, but fighting to pull out of it.  Physically, I’m getting better (thank you anti-inflammatory foods and support sleeves), but the brain still needs work.  Hubs and I joined a gym and are still tweaking our schedule.  I’m learning to recognize and listen to my body. I know when I need to switch to a different body part while training, when to start getting my heart rate down, and to start more slowly so that I can get stronger without hurting myself.  After a little over an hour yesterday (treadmill and a full-body lifting session), I don’t feel that bad.  The BCAAs do make a difference.

I would love to skip supplements and get off all meds, but that is not in the cards for me now and may not be later.  And I’m okay with that.  I refuse to let anyone shame me for doing what I need to do.

Some days are better than others, but that’s how things are with everyone.   I may move more slowly than I used to, but my inner athlete is coming back.  And she is badass.

Until next time, peace.

Human Barometer and yoga

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I think that my new nickname should be Human Barometer. It doesn’t matter how good I’m feeling or moving when the changes in barometric pressure are dramatic.

It always starts in my ankles. They feel a little tight, but not tight enough for a support or anything. I’ve I’d been training, I usually chalk it up to that. Then my knees get sore. That makes me check the weather a little more closely. If I see rain in the forecast, I know what is on the way and get out the turmeric and Aleve.

Once my hip and spine stiffen and go from an ache to throbbing pain, it’s on. So much on. Right now I’m typing this in a recliner with my back, neck, and head firmly against the back of the chair, legs raised in a partial recline. It’s the only comfortable position at the moment. My ribs, elbows, wrists, and shoulders are feeling it now, too. Tropical Storm Cindy is not heading my way (be safe, y’all), but I feel it anyway. Rain is coming ad we’ve had some here in Charleston since Sunday night’s thunderstorm.

Weather-related pain flare aside, I will get in some yoga today. It is International Yoga Day after all. I recognize my current limits and have a mix of workouts in my arsenal. I also know that I will always have a dog on my yoga mat if I step away.  16422838_10154381378520679_8437767875822278167_oFlexibility training helps make these bad days easier and make good days better.

Between yoga and walking, I am getting stronger physically. It just doesn’t feel like it on days like this. I’m trying not to fall into the pit that seems to open up whenever a flare is extended. Spoonies, you get me, right?

Happy Wednesday, Happy Solstice, and Happy International Yoga Day! May it be amazing!

It’s Fibromyalgia Awareness Day

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May 12 is Fibromyalgia Awareness Day.    Send good thoughts to someone who deals with this.  If you don;t have it, imagine a daily migraine, but all over your body.  Or a horrible case of the flu.  Some days are better than others.  Some of us can work, others can’t.  The pain and fatigue can be debilitating.  And don’t get me started on the brain fog.

What’s your Fibro story?  My personal Fibro story began years before my diagnosis,  You’ve heard it before, so I won’t repeat it.  I’m sure you’re tired of hearing it by now.   Pain is my constant companion and I am incredibly thankful for a family who gets it for the most part.  The kids (adults now) know when I need the sleep and don’t necessarily see it as me taking a lazy day.  Hubs has taken over 95% of laundry duties because the bending and reaching tend to lead to pain spikes.

After my official diagnosis in 2016, I went into research mode; searching on and offline for resources that would help.  The National Fibromyalgia Association has been a weekly stop. The resources have been invaluable to me.   If you know someone with Fibro and don’t know much about it, this is a great place to start.

To my fellow spoonies, let’s raise our glasses to the doctors and researchers who get it and are looking for ways to make our lives better.  Cheers!

Healing by any means

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No, this is not another ‘no longer vegan,’ posts.  It’s just a commentary on trying work around meds and supplements that aren’t exactly veg-friendly. 

It’s a struggle,  y’all.  Not sticking to my way of eating, but trying to find vegan supplements and meds.  I’ve found many that work, but not all are veg-friendly.   Does it make me less compassionate?   No.  It means I’m one of the many dealing with this.

If you choose to judge me based on this mindset, so be it. Step into  body on a high pain day(well, week)  and talk to me afterward.  I’m doing what needs to be done while I find the optimal balance.

Does it mean veg-friendly instead of certified vegan supplements?   If the veg-friendly products work best, yes.  Does it mean dealing with meds that have no vegan alternative?   Yes, unfortunately.   Does it make me sad?  Yes.

I need to keep it together while on the journey.   On days like today, that means healing by any means necessary.

Yoga classes for kids at Hazel Parker Playground

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Yoga is my jam!  It helps me retain and increase flexibility in my stiff joints.  It helps me keep and regain my calm when things push my buttons.  It helps me relax my mind and body which helps reduce my pain.  It was an important part of my physical therapy regimen and equally important now.

I understand that yoga is not everyone’s cup of tea and have heard many spiritual arguments against it.  Yoga does not always lead to spiritual practice.  Fitness yoga is just that, another road to fitness.  In a class, students learn to breathe properly while moving through a sequence of poses.  Students learn to relax, focus, and improve coordination, balance, and flexibility.

Yoga for kids could be invaluable in teaching them how to deal with stressful situations in class, on the playground, and at home.  If you want to try yoga with your child, there are many videos available on Hulu and several yoga and Pilates channels available on Roku.  Charleston-area people have an option available through Charleston Parks and Recreation. Registration is open for a 12-week class for children ages 5-10.  The Thursday class runs from September 10 through November 10th and is $100.  The 3:30-4:40 pm time is perfect for an after-school activity!  Register online or in person at Hazel Parker Playground at 70 East Bay Street Downtown.

Have you tried yoga?  Your kids?   ‘m about to get my yoga on at 2 pm.  Maybe you can join me.

Until next time, peace and have a great weekend.

Entering my 46th year

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Howdy, y’all.  I’m 46 now. I’m now six years older than my father was when he died.  In some ways, I’m healthier.  In others, well, you know the deal.

At my last appointment, my rheumatologist said she didn’t know what else to try because various meds did not have much of an effect.  She also joked that I’m one of the rare types who lose weight on Cymbalta rather than gain.  Ha, ha.  (Note: I went off Cymbalta and gained everything I’d lost.  I’ve since tweaked my menu and am back on the losing track.)  she also had no answers for me about my swelling hands or glands on my neck. I am not amused.  I have an appointment with my primary later this month.  Maybe she’ll have answers for me since I had blood tests a few weeks back.

I’m tired, frustrated, and still fighting.  Going more natural in conjunction with some meds to find the optimal balance and solutions.  I’ll always have arthritis and Fibromyalgia.  How my body handles them is what will change.  I’m listening to my body more and found the ideal training schedule.  I wear my pedometer every day and strive to get in more steps each week.  I eat more leafy and non-starchy plants than bread and other starchy goodness.  I eat less sugar.  I drink lots of water and herbal teas, especially those containing adoptogenic herbs (Organic India’s Tulsi Teas are my favorite).  I’m getting more sleep and taking Melatonin for help on bad days. I nap when necessary.

I will get better.  I will improve my quality of life. It’s getting better every day. Cheers!

How are you celebrating the newest year of your life?